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Lets make a Quilt for Kristin

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Roxana replied on Wed, Aug 14 2013 4:15 PM

Jackie,

I love the quilt! You've done a wonderful job. Thanks so much for sharing your talents with all of us. Thanks also for the update.

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I am very sorry to post this update from Kristen. :(. Kristen, you are in our thoughts. I am just beyond words. I'm so sorry. 

Hi All --


I have to tell you that my new DBS unit did not work.

When we went to turn it on on Wednesday, on all four wires, not only did they do nothing for the tremors, but they also caused . . . 

  • Sudden numbness in the face, neck, and upper chest
  • Trouble speaking
  • Trouble keeping the right eye open or even focused.
We did not try walking.

We're going to try reprogramming it again in two weeks.  I do not hold much hope for it working.  When we left Dr. Rezak's office yesterday we left the unit turned on to a level that didn't appear to cause any side effects, although it didn't control tremor.  This morning when I got up, it was clearly obvious that setting would not work either.  My face and most of my left side were numb when I got up this morning.  I immediately turned the unit off, and all feeling came back immediately.

Dr. Rezak and Dr. McGraw both have now beyond any doubt recommended I go on permanent disability from work.  After several hours of talking it over with Richard, we both believe the doctors are right.  I will not be returning to work.

That's enough for now.  If you want to know more, feel free to ask.


Raleigh, NC

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Roxana replied on Thu, Aug 15 2013 7:06 PM

So sorry to hear this. Thanks for passing it on. Thoughts and prayers for Kristin and Richard...

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Nana replied on Thu, Aug 15 2013 7:12 PM

Carolyn thanks for the update.

 

Kristen I am so sorry.  I had so hoped that things would go better.   God Bless.

Vinton, Virginia

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Jacy replied on Thu, Aug 15 2013 7:52 PM

Kristin quilt went out in the mail today, she should have it Saturday. After all these discouraging and difficult weeks I hope it will bring a smile to her face.

 

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Roxana replied on Thu, Aug 15 2013 7:58 PM

Jacy, thank you a million times over for the coordination and quilting of this quilt. You did beautiful work and I know it will bring a smile to Kristini's face. Thanks again from all of us.

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Joyce replied on Thu, Aug 15 2013 8:03 PM

Jacy what  beautiful work you have done on Kristen's quilt.  I pray for her healing and that this quilt will bring her many peaceful and joyful hours.  I hope she can just feel the love, prayers and hugs that have gone into it.  Thank you Jacy for all the quilting and putting these blocks together.  It will take me years if ever to get this good at quilting.

 

Joyce

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Kristin, you are going through so much. Although I don't know you personally, you are a quilty friend at heart and I hope the quilt gives you some warm cozy moments.


In the beautiful Pacific Northwest!

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weezee56 replied on Thu, Aug 15 2013 8:23 PM

Kristin, I'm so sorry to hear you had to go through so much Wednesday. I hope and pray they can straighten out everything and make your DBS unit work properly.

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Ginny replied on Thu, Aug 15 2013 8:31 PM

That quilt is sure to be a bright ray of sunshine in her life right now considering the problems she had on hooking up her electrodes.  May the Lord give her peace in her life.    Ginny

 

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Bonita replied on Thu, Aug 15 2013 9:39 PM

So sorry to hear the new update on Kristin. Jacy , I'm sure the quilt will brighten her day when she sees it. God Bless you all.

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Oh Kristin, I am so sorry to hear about the device you have. Although we don't each other personally, I feel I know from all you do for this site. Please take care of yourself. I know how hard it is when you are told by 3 doctors that you will never be able to work again. Fortunately, I have finally gotten used to the idea. I'm sure you will too, eventually. Just take care and rest for now. You still have your quilting friends.

Georgetown CA I'd Rather Be Quilting

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Marge P replied on Thu, Aug 15 2013 10:32 PM

Kristen - after going through so much for so long, I can't imagine how you felt when things didn't go as hoped for.  Please remain strong and positive and maybe a new treatment will come along that will work for you.

I read your letter to your father - what a wonderful tribute to your loving father.  It sounds like you have had a wonderful upbringing with loving parents and now have a very loving husband.

I hope the beautiful quilt that Jacy quilted for you from all the lovely blocks made by your QCA sisters warms you and gives you plenty of hugs.  I hope being home with your furbabies is very relaxing for you.

Please take care.

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Frances replied on Thu, Aug 15 2013 10:48 PM

Kristen,

I am so sorry prayers and hugs, are coming your way lots and lots of them.

lots of love

Francesxx

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Nana replied on Thu, Aug 15 2013 10:50 PM

Kristin

I know what it feels like to have to admit that you can no longer work.  I know that I went thru lots of feelings of guilt and uselessness.   Just know that those pass and you can get back to life.  Just a different life than you were used to.   Lots of love and hugs coming your way.

Vinton, Virginia

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